BREATHLESS FOR RYNAH
Make a True Impact
"Life is not measured by the number of breaths we take, but by the moments that take our breath away.” Maya Angelou
Little Rynah du Plessis suffers from Cystic Fibrosis, an inherited disorder that causes severe damage to the lungs,
digestive system and other organs in the body. Help us help her family raise the money to buy life-saving medicine
that stops this condition in its tracks for as long as she has access to it.
​
About Our Challenge
WHAT IS CYSTIC FIBROSIS?
CF is a genetic disorder inherited from parents - typically innocent and oblivious carriers of recessive genes. Only about 70 000 people worldwide suffer from this genetic condition, but the effects tend to be devastating.
At its heart CF causes the production of abnormally thick mucus, which has a domino effect throughout the body. This progressive genetic disease clogs up and erodes life-giving lung function, hampers the body’s ability to digest food, and ultimately impacts all of the body’s organs. Patients with CF have an unpredictable course, but all have a reduced life expectancy. Screening is easy and if diagnosed early, life-prolonging treatment is available.
.png)
HOW DOES CF
AFFECT RYNAH?
We have decided that this will not define our little girl.
In fact this makes us own the 'now' and demands we all live each day to the fullest.
We trust in God's plans for her life and that He holds her in His hands.
​
There is a treatment, which due to its efficacy, has seen the unexpected closure of long-standing CF wards which are no longer needed. This groundbreaking modulator therapy drug, Trikafta, is not accessible in South Africa yet. This is due to extremely high costs (listed as between US $270,000 to US $310,000 annually). A generic from Argentina, namely Trixicar, is available at 10% of the cost, but patent rights prohibit them from exporting the medication to South Africa. With a special license, and travel to Argentina, we will be able to buy a year's supply at a time for Rynah. This drug promises Rynah both a normal life expectancy and a higher quality of life. The younger she starts the meds, the more it prevents the progressive damage caused by CF. Read more and find references under Our Mission.
.png)
OUR CHALLENGE
TO YOU!
We are narrowing in on the end of 2022 - another interesting year in an unpredictable decade. With all that is going on it’s easy to get lost in drama and difficulties. We challenge you to take a moment, take a breath and appreciate all you have to be grateful for.
All that you may take for granted. To celebrate life in general and Rynah’s courageous life in particular, we ask you to join us in an end of year challenge with a difference. A challenge you set for yourself. There are no rules - other than it needs to resonate with you, push your limits, fill your heart and inspire others. Be it an athletic endeavour or something creative. Something you’ve wanted to do for a while.  Something that makes you breathless, something that takes your breath away.
Join Our Challenge
Here is how
-
STEP 1:
Donate any amount you can afford to Rynah’s Back A Buddy campaign here or via EFT:
FNB/RMBAccount Holder: Jacobus Du-Plessis
Account Type: FNB Aspire Current Account
Account Number: 62754915373
Branch Code: 250655
2. Give your name and what you are going to challenge yourself to in the payment details
​
-
STEP 2:
Spread the word and challenge your friends/ colleagues to join in on the fun
​
-
STEP 3:
Get going with meeting your goal
-
STEP 4:
Post a photo on Breathless4Rynah's Facebook or Instagram page when you’ve reached your goal
-
STEP 5:
Claim bragging rights
​
-
STEP 6:
Feel amazing about yourself
-
STEP 7:
Feel the gratitude fill your heart
-
STEP 8:
End the year strong
“I’ll run 5kms 5 x times a week for a month”
"I'll run my first half-marathon"
“I’ll do an art class and do my first painting”
“I’ll do 1 hr of yoga every day for a month”
“I’ll hike 20 kms with my best friends every weekend till the end of the year”
​
"I will take singing clasess and attend an open-mic night"
“I’ll climb all the main peaks in Cape Town in November”
​
"I will take ballroom dancing classes and learn to tango"
“I’ll do that course I’ve always been meaning to do”
​
"I will travel to one destination on my bucket list"